Uh oh--one more message after I said yesterday that there would be no more--t forgot to say, the rehab is Loveless Rehab--He will be working in the morning hours but free at lunch and in late afternoon and onward. Also it turns out that Brian slept funny a few nights ago and did something to his back and is now in a lot of pain so can't walk or do anything well without exasperating it. Pat

Brian progress photos

I think this will be my last daily update. I'll probably log on once a week for a while but right now things will be mostly gradually uphill in re-hab for up to 10 days. Brian is sitting here now waiting to be taken to rehab. He is dressed in sweats with hooded jacket so he looks like a gangsta. He says he could walk to rehab which is just across the street. Of course he couldn't but he certainly could go in a wheel chair if the rules permitted. But, the rules don't permit. In order to travel directly across the street, it is necessary to have a wheel chair to go down stairs, then an ambulence to drive across the street and a wheel chair to meet him at the curb and go in to the rehab facility. The ambulnce which was expected an hour ago now may not come for hours says the nurse. Nonetheless I think Brian has had excellent care here and we are grateful. With this last daily message, I'm going to try to send some photos to show his dramatic progress but don't count on it working. Oh, by the way, people can visit him in re-hab without the gear if you want to. Brian says hi to everyone. Pat --Ookay photo thing worked but as a separate blog which will probably show up above this. Also the order looks wierd but you can figure out from early to late pictures. Bye, Pat

Brian is being helped to walk now and after I complained to the Dr, he wrote an order for people to come help him walk 4 times a day. I think this won't be for long however as they are talking about moving him to a re-hab facility as early as tomorrow. Someone from that facility is coming over later today to test whether he is a good candidate for their type of re-hab. Meanwhile the infection is almost under control. They take him off antibiotic today. There was quite a little scare yesterday which is resolved today. Someone here told us yesterday that he would be infectious for months and have to stay in isolation even at home. But then the infectious medicine doctor was in and said he doesn't even have to be in isolation now but the hospital has its rules and once you are in an isolation room (he was put in one day before yesterday) they will never let people come in without mask, gloves and gown. Assuming he goes to rehab tomorrow, that won't matter for long. The heart doctor was in this morning and says his heart is doing very well and (though one is more likely to have a 2nd heart attack in the first year after the first) he should be able to do everything he was doing before...including digging irrigation ditches and planting trees. Dr. Federicci says the hard physical activity had kept him in good shape and so he has been able to recover faster. Kim is still here much of her day even though she's also working full time. Kim is a nurse specialist in paliative care and so, even though she says she doesn't know much heart and infection issues, she seems to me to be a genius and asks many questions which I wouldn't know enough to ask. Braden is relieved that his father is doing so well. He will go back to Kentucky by week's end. Finals are next week and he is an art history professor. Deb (my sister) is in Albuquerque now and helping not only here in the hospital but also at home. So yesterday we picked up Rosie from the Boxer Dog Zoo (really. only the breeders house) where she has been with 19 other dogs most of which are new puppies. She is exhausted and keeps searching each room over and over--I assume looking for Brian. Brian says that he is amazed at the blogging comments and really appreciates hearing from all of you who have logged in and also for the cards and emails. He says he didn't know he had so many friends. Until tomorrow, Pat

Monday morning and all is going well. Yesterday, I didn't thinks so. He was moved from the ICU to a "regular" isolation room where the staff is a little less responsive and a little less willing to take my word for things. The main example was that the doctor had told the ICU nurses that he had to get up and walk..told Brian.."okay you've got to get your but out of this chiar often every day" but that message failed to get made in the form of a formal order. The ICU nurses didn't get around to it because he was going to be moved and the new nurses refused to help him get up because there was no written order and because they needed physical therapy guy to say so. But no physical therapy is available on the weekends. They pretty much ignored my pleas to help him get up and walk so I move into bossy mode (just short of bitchy) to pretty tmuch no effect. Brian counteracts my effect on the staff by being cute and charming. Nonetheless they weren't too happy with him because he got up in the middle of the night to go to the bathroom. Since he had to unplug himself from evreything, that set off alarms and brought staff running.
Today, the pt guy did come, walked with Brian and walker for maybe 50 or 60 feet. He did well but is now exhausted. I'm now trying to be charming myself and mostly succeeding. Beter for Brian that way. Brian says hi to all . More later. Pat

Its Sunday morning and sitting (in a chair no less) is a very alert talkative guy whose chief complaint is that he is starving to death. He hasn't had food for going on 40 hours. That decision is based on his having failed the swallow test so they were afraid he might once again aspirate spit up food. He says he has now studied for the test and when they give it again, he will pass. I'm sure he will as he is not gagging much at all now. He's sitting up in the chair but they have not yet gotten him to his feet because the physical therapists apparently don't work on week ends. The nurse promises she will get him on his feet today. He is very very weak. He trying right now to wield a pencil to do a crossword puzzle. The page is pretty much a mess but he assures me the answers are right. We really don't have any doubt that things are working out. However the haz mat garb is still in effect so its hard to visit. He was really glad to see Rod and Judy Groves last evening and his son, Braden, who arrived from Kentucky yesterday. But the precautions make it hard on the guests. Kim and John have been here throughout and are wonderful. We are basically spelling each other now so we can each get some rest. Braden is going to take the late shift tonight. Debby (my sister) is coming tomorrow and will be more help. Bye for now and again thank all of you for your interest and comments. If you are just looking in to this , try becoming a "follower" so you can add comments. It really is simple. And I can read teh comments to Brian. Love to all. Pat --If anybody knows how to down load photos, onto this would you write a comment then I can send photos one early one today (Nell?)

Good Morning, What a difference a day makes. We've had a very eventful 24 hours. Yesterday, despite the nurses prediction, the pulmonologist elected to first see whether, after having been awakened, he could tolerate the ventilator being turned off for 10 minutes. He could and so the Dr. asked if he wanted it out. Brian though now alert couldn't talk because his vocal cords hadn't been used in a week so finally he shrugged and the Dr said okay I'm calling it...lets take it out. Within minutes it was out and Brian was able to maintain his breathing.. He's now under no sedation and no ventilator and no meds except for the antibiotic for the lung infection. all is wonderful. With a few minor exceptions. Because he's no longer breathing in a "closed system" they are way way more strict so everybody who enters the room has to wear mask sown and gloves. He needs something right now so more later. Pat